Katy's Story

I was born 8 weeks premature weighing a small 3lbs 9ounces.  At first, I seemed like a healthy baby, just very small and premature but after a few weeks in SCBU, I was allowed home.

However, when I was about 3 months old, I developed a chest infection. My Mum and Dad took me to the local hospital where I was taken in an ambulance, to a hospital in London. After lots of tests, observations and different doctors looking at me, I was diagnosed with Scimitar Syndrome, a congenital heart defect and meaning I also only have 1 functioning lung.

Since my diagnosis, I have been able to lead a relatively normal life. Although I have been in hospital, it really hasn’t stopped me from doing things I want to achieve. I have 10 GCSEs, high grades in my Extended Diploma and now I am in my second year at University with the hope of becoming a hospital play therapist. However, it is not all about education! I am a qualified Rainbow leader in the Girlguiding association and I am a member of my University’s trampolining team, something I really enjoy.  I have also conquered some big achievements for me over the past few years, I have trekked up the Riff Mountains in Morocco which was by the far the hardest thing I have ever done and I have also did cross country at school every year. This has all come with its fair share of challenges but I am determined not to give up and not let my illness take over.

From being in the trampolining team, I contacted the charity Fixers UK. Fixers is a fantastic charity who helps young people to share their past experiences and ‘fix’ the future. I made a film with Fixers to show that my illness does not stop me from being in the trampolining team.  Since then, I have been in two local newspapers and a local radio station which have both been great opportunities.

I am urging people to stay determined, do what you enjoy and stay determined.

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